Saturday, August 22, 2009

Good Days. Very good days, Bad Days, Very bad days

Some days are great and some are very tough. What constitutes a good day? A full night sleep (and a decent nap)and 2 bowel movements are the basics. After that - good eye contact, following direction, changing activities without a meltdown, minimally stimming- repetitive behaviors- and using language appropriately. While this may seem like what every parent of a 3 year old looks for- for us it is slightly different. Some days Robbie looks you in the eye and says " Mama, I did it" when referring to getting himself dressed- or "are you ok? and kisses his sister when she falls down and you feel a real sense of hope. Other days when he is totally focused on picking out 1 particular shape of bead and putting them in his backpack- 1 at a time for 3hours- and you can't get his attention- you feel despair.
When you have a stretch of good and very good days- your hopes and dreams of "curing" your child feel very real and within your grasp. When you have a stretch of bad and very bad days you feel your heart breaking. All you want is for your child to be happy and healthy. To learn, to have friends and be able to develop relationships- as other do. But on those bad days- you wonder. Will this ever stop being so hard? Will your heart ever stop aching for your child? I know the answer is probably no.

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