Friday, June 14, 2013

Tired and Frustrated, again

The last two nights have been rough. Robbie has been extremely stimmy and not sleeping- which means I am not sleeping either. Wednesday he woke up and was whining a lot before school. Not a full cry, but he let me know he was not happy, with few real words. That day he came home with a bad report from school. He would not sit still for work and cried quite a bit. After going to the lake that afternoon, I was sure he'd have a good night, but watching him at dinner did raise a red flag. His eyes were dilated, hands were wringing , and he could not sit still. Wednesday night he woke up at 2am for the night. He complained of stomach pain. By 4am I put a movie on and gave him his IPAD, and then went to make coffee. Thursday he had a better report from school but was crying/whinning and looking for lots of attention when he came home. If asked "what is wrong, what hurts?" No response but a whine. Thursday night- same drill. Up around 2am for the night. Again complaining of stomach pain. He asked for tickles on his tummy- but it did not help. The frustration of Autism. His communication is once again limited. Something is obviously bothering him and he can't verbalize it. A similar situation happened last week at dinner. Rob and I were asking Lexi about her kindergarten testing. She was explaining the questions they had asked, name, address, alphabet, counting, etc. I asked Robbie how his day was and he started to cry. A real cry. How frustrating must it be to hear his 4 year old sister verbalize her day without any problems and he simply couldn't find the words. Makes me tear up thinking about it. As far as stomach pain- that is a common complaint. I have taken him to an allergist, gastroenterologist, neurologist (3),pediatrican, developmental pediatrician (2), and DAN ( Defeat Autism Now)doctor, natural medicine doctor (2) and have discussed problems with his gut with all. All tests have come back negative for celiac disease. He does have an allergy to dairy , eggs and soy, which we watch. But no one has a real answer. Frustrating. Hoping for a night filled with sleep!! Fingers double crossed!!

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